When this first came up I spoke withthe medical specialists at AOPA. They let me know which tests I would need, so I went in with a plan. I thought I was on a smooth path until July happened.
I am now with an AME, who happens to be one of the Cardiologists that sits on the FAA's cardiology review board and has a direct line to the senior cardiologist at CAMI. My recommendation is that if you can find a Senior AME who specializes in your condition, anywhere in the U.S., then go visit them. Failing that, there are a few AMEs that focus on Special Issuances and getting folks flying again.
Feel free to PM me if you have other questions.