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Non Hodgkins Lymphoma "watch and wait"?

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Non Hodgkins Lymphoma "watch and wait"?

Old 09-24-2018, 04:45 PM
  #1  
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Default Non Hodgkins Lymphoma "watch and wait"?

Was on a Special Issuance for Follicular Non Hodgkins Lymphoma. Had been on remission after radiation for the last 2 years. Failed my CAT then PET scans recently. Needle Biopsy came back as a slow growing Follicular Lymphoma. Doctor says I should get no treatment and do a "watch and wait". My AME is saying that is a no-go with the FAA (not sure I trust him 100% because he has been wrong before on other stuff). I am going to get a 2nd opinion from another oncologist and then send my stuff to the Regional Aerospace Medicine Office.

I was wondering if there is anyone on this board who has been down this road before. Anyone with slow growing Non Hodgkins Lymphoma and was/is not getting any treatment. Wondering how OKC looked at this? I did call OKC and they were no help but I am going to send my stuff to my Regional Office and they said they can give me an answer.

Thanks in advance
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Old 09-24-2018, 06:12 PM
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I assume you have but, if not, have you been in contact with AMAS?
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Old 09-25-2018, 12:02 AM
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No but thanks for the suggestion. I just looked at their website.
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Old 09-25-2018, 07:11 AM
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Pm'd you.

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Old 06-04-2019, 11:36 AM
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I am not a pilot but am seeking some insight. A pilot friend of mine is facing this same condition (follicular lymphoma). Can anyone elaborate on what happens in a "watch-and-wait" situation? If a doctor thinks it's not the appropriate time for treatment, would my friend still be able to fly?

And once treatment starts, then what? Under what general conditions would a special issuance eventually become possible? Remission for a certain period of time? Drug-free for a certain period? I'd appreciate any insight.

Thanks!
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Old 10-21-2020, 07:37 AM
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I'm interested in this as well. Anybody have some insight?
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Old 05-06-2021, 07:29 AM
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It says the OP, sherpster, got banned, but hopefully he comes back with another username, as I would like to find out how everything worked out.
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Old 05-06-2021, 09:01 AM
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I was in the same exact situation. Got a second opinion from the OSU James Cancer hospital and that Dr said "watch and wait" is stupid. I got 6 months of chemo. What sherpster did is hard to tell. A second opinion could save your life.
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